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CU • News & Events

Clarkson University Professor Facilitates First North American ECHO Telementoring Program on Ehlers-Danlos Syndrome

Release Date
Monday February 24, 2020
Leslie Russek
Prof. Leslie Russek

Clarkson University Professor Emeritus Leslie Russek recently hosted the first ECHO telementoring program in North America for allied health professionals who want to learn more about managing patients with Ehlers-Danlos Syndrome.

Russek had about 30 participants from across the country join her program who came from a variety of allied health professions, including physical therapy, but also occupational therapy, speech therapy, psychology, and medicine.

According to The Ehlers-Danlos Society website, the Ehlers-Danlos syndromes are a group of connective tissue disorders that can be inherited and are varied both in how they affect the body and in their genetic causes. They are generally characterized by joint hypermobility (joints that stretch further than normal), skin hyperextensibility (skin that can be stretched further than normal), and tissue fragility.

Project ECHO is a healthcare initiative that aims to address population health in a callable way by using a hub-and-spoke knowledge-sharing network, led by expert specialist teams who provide telementoring and collaborative care.

“I presented for about 20 minutes, then we had a good discussion for about 30 minutes, where many people contributed questions and suggestions. Then I presented a case study of a patient I am treating, with questions for the group, tapping into the communal knowledge of a multidisciplinary team,” Russek said. “The motto of the program is ‘All Teach, All Learn’ to emphasize that we all can learn from one another. Although I am an 'expert' in Ehlers-Danlos Syndrome, I still learned really valuable information from other participants.”

Russek also presents at national conferences several times a year as one of the only Physical Therapy experts on Ehlers-Danlos Syndrome. She has presented at The Ehlers-Danlos Society Global Learning Conference for patients and their families to learn from experts when they might have had trouble finding knowledgeable providers where they live and has also lectured at Medical Providers Day for health professionals.

Russek will host a session every three weeks, facilitating eight sessions in all.

As a private, national research university, Clarkson is a leader in technological education and sustainable economic development through teaching, scholarship, research and innovation. We ignite personal connections across academic fields and industries to create the entrepreneurial mindset, knowledge and intellectual curiosity needed to innovate world-relevant solutions and cultivate the leaders of tomorrow. With its main campus located in Potsdam, N.Y., and additional graduate program and research facilities in the New York Capital Region, Beacon, N.Y., and New York City, Clarkson educates 4,600+ students across 95 rigorous programs of study in engineering, business, the arts, education, sciences and health professions. Our alumni earn salaries that are among the top 2.5% in the nation and realize accelerated career growth. One in five already leads as a CEO, senior executive or owner of a company. To learn more about Clarkson University, go to www.clarkson.edu.


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News directors and editors: For more information, contact Melissa Lindell, Director of Media Relations, at 315-268-6716 or mlindell@clarkson.edu.

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